A day at the hospital

I had said in the last post that Clay MIGHT be able to have the MRI as early as Monday and to not let him eat. I was actually surprised he was such a trooper!I told him "You MIGHT have to go to the doctor and if you do you have to have an empty tummy. They just want to see why you are having headaches!" He was FINE he asked for swirl cheese and root beer I told him I would bring them with me IF we went and if not you can have the cheese as soon as we find out they cant see you. At 9:35 we got he call he could be in at 1 and had to be at the Dayton Children's Med Center at 11:45 and could have clear fluids until 10 as I realized we had none other then water I called upon our awesome neighbors the Fischers who came to our rescue.
KC came home from work at 11:15 we dropped Abi off at our Neighbors and off we went. The Hospital got us right in and put a cool band-aids on that made his arm numb where the IV was going to go and stuff on his back that was different but did the same thing. Gave him his happy juice and off he went. Thy were able to look at the MRI right away and nothing was seen thus the Spinal tap was needed. He moved around very shortly after we got in the x-ray lab so he was sedated again. We got to watch him get the spinal which was pretty cool. His pressure from the spinal fluid was 28 and they drained it to a 20. The doc doing the spinal said that their was a few different versions of normal and could be high and need treated OR it could be just the high side of normal(20 is totally normal) Since he had a spinal they wanted him to lay flat for 4 hours, I thought GREAT you want a 4year old to be flat for 4 hours, what a joke. They sent us to "Almost home" (recovery) and KC went home to be with Abi. He stated waking up after 3hrs 15 min. The nurse said he could eat and I fed him (laying down)and after he could sit up he did and then 30 min later he threw up and they really wanted to make sure he was not nauseated when we left. He fell back asleep shortly and we woke him up about an hour later and he was OK. The nurse brought him a little Sprite and he drank it and was fine so I called KC (at this point it was 9pm he got Abi up) and came to pick us up. Clay took a wagon ride down to the door, I'm so glad I went with my gut and brought the barf bucket) as soon as KC pulled in the drive he used the bucket and back upstairs we went. The nurse paged the doc and we ALL waited. About 20 minutes later they said we could just go home and to just watch him and if he was still throwing up to bring take him to the base hospital or back to Children's. We finally got home about 10.
Dr. Burns talked to KC and I about the results of the tests is formally known as "Pseudo Tumor" which sounds super scary so they actually changed the name to "Idiopathic Intercranial Hypertension." This means that for some unknown reason their is a high level of spinal fluid which causes swelling of the optic nerve,and causing headaches. This can be treated by an oral meds IF we can ever find it! Apparently they don't give this to kids much! NONE of the local Pharmacies carried it in a liquid form nor could they order it! KC JUST messaged me telling me that Children's would have to fill it. Dr. Burns is VERY happy with these results, this is something that can be monitored by an ophthalmologist and eye dilation and a fancy microscope! She was sure it was a not scary problem and she was right. All things considered we are very happy with the results we found he needed glasses terribly bad and the issue with the pressure. I am confident the Docs at our old base would not have taken us seriously, they did not with little things why would they big things. I think it is a God thing that their was the pediatric neurologist working the day we went in. Dr. Burns has been so upfront, supportive, nice, and that she had fallowed us so closely. We have been truly blessed!

Adventures with CD!

Sunday Clay told us he had a headache at 3pm and it did not really stop him from playing much but he still hurt.The later it got the more it hurt. Monday morning he woke up saying it still hurt and actually took a nap on his own in the morning(VERY not normal) KC got him in at the clinic in the late morning and were very surprised with what came of it. We saw resident Doc then her reported to his attending who just happened to be a pediatric neurologist(Dr.Burns) She was pretty sure it was just a virus but wanted KC to talk to her daily about how Clay was doing and if we thought of any other history.(they work in the same area of the clinic)I came home and talked to my mom and she reminded me that Clay had said over the summer on a few different occasions said "My head is not working right!" We did not think much of it just thought he was being silly. My mother-in-law remembered that also and that Clay was also sensitive to loud sounds. KC told Dr. Burns that and she scheduled an appointment with an ophthalmologist(on
Friday) and Clay passed all their tests with 20/15 vision! We were really excited about that but then when they looked in his eyes they found he could not see! His actual Rx is +4.25.(his actual glasses will only be half of that because of how kids eyes grow and change) Dr Burns had come with us to see this other doc and she said well that is the problem! As this eye doc looked more he found his optic nerve was swollen. So the next step is an MRI and depending on what that shows he would need a spinal tap. In Clay a MRI AND a SPINAL would require sedation. In a perfect world he would only need a Spinal depending on what the MRI said. In our world we have a 4 year old that could no hold still for either and we don't want to sedate him 2x. That means we are going to kill tests with one sedation. Today we ordered his glasses and some contacts for myself. He could have the MRI as soon as Monday I will keep facebook posted.